Have you heard of SMA (spinal muscular atrophy)? I never did until a fellow mommy on the parenting board I belong to lost her sweet baby June to SMA. June was only 2 weeks old. Since losing her sweet baby June, Molly has done all she can to spread the word to raise awareness and support for SMA and her friends have come together to help her carry out this mission. Wont you please help by making a donation in honor of sweet angel June Marie Howsden?
SMA is a disease that attacks the neurons responsible for muscle movement. It is the #1 genetic killer of children under the age of 2. 1 in 40 Americans carry the gene that causes the disorder. Amazingly enough, the National Institute of Health has selected SMA as the closest to treatment of more than 600 disorders, including Parkinsons and Alzheimers. Leading US researchers have stated that a viable treatment for SMA is possible within 5 years IF they are provided the proper resources.
Our goal is to raise $10,000 by October which would have been June's first birthday.
If you can, please help and click on the link below to make a donation. No donation is neither too big or too small. Anything you can give will be a tremendous help to all families who are dealing with this in their everyday lives.
Thank you.
http://www.firstgiving.com/juneangelbaby
To learn more about SMA please watch this 13 minute video
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